Vol VII, Issue 2 Date of Publication: May 07, 2022
DOI: https://doi.org/10.20529/IJME.2021.059

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Dementia: Trauma and loss of personhood vs Family as recuperative space

Sarita Agarwal
Sangeeta Jhajharia
The paper looks at the exploration in three Indian novels in English, of the hitherto glorified Indian family through the paradigm of dementia, examines the strained space called “home” in the shadow of dementia, and its transformation into a recuperative space with the help of support systems other than immediate family members. These three recent texts in Indian writing in English have discussed this crippling condition; which earlier authors shied away from. Anuradha Roy’s The Folded Earth (2012), Ranjit Lal’s Our Nana was a Nutcase (2015), and Pankaj Varma’s Silver Haze (2014), focus on the life-changing effects of the deadly disease dementia. These literary texts opt for a non-medical approach through which the person suffering dementia is depicted, rather than dementia itself. The family becomes a narrative prism through which to view the changing equations in relationships, the erosion of the family structure, instead of the specific medical condition. In conclusion, one could say that families become the recuperative space for patients rather than medical facilities for long term care. These Indian writers in English do not focus much on the medicalisation of dementia or geriatric health issues. They do mention medical treatments, but the spotlight is on the family, not on clinical viewpoints or medical approaches. Key words: Dementia, disorientation, trauma, deterioration, family space, caregivers.

Copyright and license
©Indian Journal of Medical Ethics 2021: Open Access and Distributed under the Creative Commons license ( CC BY-NC-ND 4.0),
which permits only non-commercial and non-modified sharing in any medium, provided the original author(s) and source are credited.

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