Announcements A Joint Statement on Technical, legal, ethical and implementation concerns regarding Aarogya Setu and other apps introduced during COVID-19 in India by Jan Swasthya Abhiyan (JSA), Internet Freedom Foundation (IFF), Forum for Medical Ethics Society (FMES), and All India People’s Science Network (AIPSN)   |   Submission to the National Human Rights Commission (NHRC) on behalf of Hub5 (HEaL Institute, APU, Seher-CHSJ, and IAPH) – COPASAH on human rights issues confronted by ASHAS and ANMs during the Covid-19 pandemic | Aug 7, 2020   |   Letter to MMC by FMES, PUCL-MH, FAOW, and MFC urging to restore its order suspending licenses of two doctors accused of abetting the suicide of Dr Payal Tadvi

Cultural barriers, ‘competence’ and informed consent in population-based surveys

Sunita Bandewar


Abstract

In India social science research in health benefited from the evolution of ethical guidelines through a national initiative during 1997-1999. These guidelines provide a concrete framework within which a study design can be developed, ethical issues can be thought through, and researchers can visualise real-life situations and the problems they will face—all before starting work. However, despite this process, questions that were not anticipated come up in the course of fieldwork.

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