Announcements Talk on ‘How Pharma Companies Fudge Data’ on 23rd September 2019 in Mumbai   |   ESIC Medical College and PGIMSR, Chennai present Wissendurst’19 on 20 September 2019 with networking partner Forum for Medical Ethics Society and FMES’s Institute of Health Sciences   |   Citizenship, Governance and Accountability in Health – Join the COPASAH Conclave of Global Health Accountability and Human Rights Advocates: October 15-18, 2019 New Delhi, India   |   Open Letter: Stop the war on Syria’s hospitals

Conveying the status of a female DMD carrier foetus ‒ A dilemma

Ishita Goyal, Yogesh Suman

DOI: 10.20529/IJME.2019.019


Abstract

This case study discusses the question of whether or not the information that a female foetus is a carrier of Duchene Muscular Dystrophy (DMD) should be conveyed to expecting parents. As only a female foetus can be a carrier of DMD, conveying the information of its carrier status would effectively disclose the sex of the foetus, which is against the provisions of the Pre-conception and Pre-natal Diagnostic Techniques Act (PC-PNDT Act), 1994. The Act states that the gender of the foetus may not be conveyed except in those cases where the foetus (itself) has genetic or metabolic disorders, chromosomal abnormalities or congenital malformations including sex-linked disorders. Further, while the Medical Termination of Pregnancy Act (MTP Act) permits termination of foetuses with certain abnormalities or diseases, it does not permit termination of a foetus with carrier status of a disease. We suggest that suitable modifications may be made to the PC-PNDT Act as also to the MTP Act.

Full Text

HTML PDF

Keywords

N/A

Refbacks

There are currently no refbacks.

Article Views

PDF Downloads

Click here to support US