Time | 2010 November 17 |
8 am onwards | Registration |
8.30 to 1.00 pm | SYMPOSIUM FOR ETHICS COMMITTEE MEMBERS.
Moderators Nandini Kumar, Co- investigator, NIH project, National Institute of Epidemiology Dr.Prathap Tharyan,Director of the South Asian Cochrane Network and Centre, CMC Vellore George Thomas,Editor, IJME |
8.30 to 1.00 pm | PUBLICATION ETHICS WORKSHOP
Moderators Peush Sahni, Editor, NMJI Sandhya Srinivasan,Executive Editor, IJME Nithya Gogtay,Associate Editor, Journal of Postgraduate Medicine |
2.00 to 3.30 pm | PANEL DISCUSSION- REGULATION OF MEDICAL EDUCATION AND PRACTICE
Facilitator Rama Baru,Professor, Centre of Social Medicine and Community Health, JNU Panelists SK Sarin,Director, Institute of Liver and Biliary Sciences,New Delhi N Ananthakrishnan,Former Head of Department of Surgery, JIPMER, Pondicherry S Sreekumari,Professor of Biochemistry (retired), Medical College, Thiruvananthapuram Anjali Gopalan,Founder and Executive Director of the Naz Foundation(India) Trust Loon Gangte,Delhi Network of Positive People (DNP+) |
4.00 to 6.00 pm | INAUGURATION |
Welcome address
Renu Saxena,Secretary, Institutional Ethics Committee, AIIMS |
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Chief Guest
Ramesh C Deka,Director, AIIMS, New Delhi |
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Chairpersons
Justice Leila Seth(Retd), Former Member, Law Commission of India George Thomas,Editor, IJME |
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Inaugural address
Sujatha Rao,Secretary of Health and Family Welfare Ministry, Government of India |
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Keynote address
Sanjay Nagral,Department of Surgical Gastroenterology, Jaslok Hospital and Research Centre, Mumbai |
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Keynote address
David Legge,Associate Professor, School of Public Health, La Trobe University, Bundoora, Australia |
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Felicitation of Sunil Pandya, Chandra Gulhati and Vasantha Muthuswamy by Amar Jesani, Chinu Srinivasan and Mala Ramanathan | |
Time | 2010 November 18 |
8.00 to 9.00 am | Registration |
9.00 to 10.30 am | PLENARY I: STRUCTURAL ISSUES: EQUITY AND RIGHTS |
Chairpersons
Samiran Nundy,Consultant Gastrointestinal Surgeon, Sir Ganga Ram Hospital, New Delhi Sarojini NB,Sama, Resource Group for Women and Health, New Delhi |
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Keynote address 1
Kausar Khan,Department of Community Health Systems, Aga Khan University, Karachi, Pakistan Global and local health inequities |
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Keynote address 2
Gita Sen,Professor, Indian Institute of Management, Bangalore The Koppal experience |
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Keynote address 3
Yogesh Jain,Jan Swasthya Sahyog, Chhattisgarh Medical care services: creating parallel systems for rich and poor |
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10.30 to 11.00 am | Tea |
11.00 am to 12.30 pm | PARALLEL PAPER PRESENTATIONS: Groups P1 to P5 |
Group P1: Research among vulnerable groups | |
P1: Leni Chaudhuri, Reena Mary George:Ethics in prison health research: health and human rights issues affecting women in prisons in Maharashtra | |
P1: Sunita VS Bandewar:Community engagement in global health research: the case of the Majengo observational cohort study, Nairobi, Kenya. | |
P1: Chesmal Siriwardhana:Ethical dilemmas in mental health research among internally displaced people | |
Group P2: Building bioethics theory | |
P2: Sridevi Seetharam:Is the notion of human dignity a sufficient basis for global bioethics? | |
P2: Sanjeev Sood:Ethico-legal dilemmas in euthanasia | |
P2: Anil Kumar:Patient in question: is it only a one way relationship with regards to ethics, equity and justice? | |
Group P3: Ethical challenges in first contact care | |
P3: Biraj Swain, Manohar Agnani:Governance quo vadis: disguised private practice and the challenge of ensuring ethics | |
P3: Ashifa Sarkar Gayatri Chavan, Anjali Suryawanshi, Anjali Gokarn, Ashish Malekar, Benazir Patil, Shanti Pantavaidya, Neeta Karandikar:Addressing maternal and newborn health services by general practitioners for Mumbai’s urban poor: a case of unregulated quality | |
P3: Rewa Malhotra Kohli:Exploring gender issues and needs of family care providers of PLHA: a case study from Pune, India | |
Group P4: Health finance and access to health care | |
P4: Meghana Chandra:Social justice v. efficiency: the ethics of revenue generation through user fees in the public health sector | |
P4: Helen Sheehan:Medicare in the USA: a review of 45 years of health provision | |
P4: Md Ziauddin Khan, Rabi Narayan Parhi:Public health and policy infidelity: an enquiry into the nature of health provisioning in India | |
Group P5: Medical education | |
P5: Daphne Viveka Furtado:In search of a “medical ethics education” grounded in the Indian reality | |
P5: Jayakrishnan.T:Ethical issues in creating a cadre of rural doctors | |
12.30 to 1.30 pm | Lunch |
1.30 to 3.00 pm | PARALLEL PAPER PRESENTATIONS: Groups P6 to P10 |
Group P6: Participation and informed consent in research | |
P6: Tamara Livshiz, David Osrin, Ujwala Bapat, Glyn Alcock, Sushmita Das, Neena Shah More,:Research ethics in developing countries: results from a participatory approach to ethical dilemmas, Mumbai, India | |
P6: Angus Dawson:Cluster randomised trials and the problem of informed consent | |
P6: Natasha Anwar, Mariam Hassan, Saima Faisal:Review of informed consent forms used in genetic research studies at a cancer hospital in Pakistan | |
Group P7: Disability and ethics | |
P7: Renu Addlakha:Ethics and pragmatics of research on disability | |
P7: Smitha S Parakkal:The implications of the UNCRPD on the governance of health care of persons with disabilities | |
P7: Harish T, Santosh Kumar Chaturvedi:Amendments to the Mental Health Act, 1987 and ethical issues | |
Group P8: A gender critique of the health system | |
P8: S V Kameswari, Prakash Vinjamuri, Kavitha Kuruganti, Prajit K Basu:Medical ethics: a case study of hysterectomy in Andhra Pradesh | |
P8: Supriya Bandekar:When the political is personal: State discourse through the National Population Policy and the Mahrashtra state population policy | |
P8: Sana Contracter, Sangeeta Rege:Need for better governance in responding to cases of sexual assault in the health sector | |
Group P9: Organising health services for equity and justice | |
P9: Rupali Gupta, Sangeeta Rege:Challenges/dilemmas in institutionalising a crisis centre for women facing domestic violence in the public health system | |
P9: Oommen C Kurian, Prashant Raymus, Jui Ranade- Sathe:Equity through exemptions? User fees in a municipal hospital in Maharashtra | |
P9: JK Lakshmi:Integration of AYUSH into PHCs in Andhra Pradesh: lacunae to be explored | |
Group P10: Humanising the patient-provider relationship | |
P10: Shobha Mocherla, Usha Raman, Brien Holden:Expressions of equity: imbalances in the patient-clinician interaction | |
P10: Radhika Taroor:Ethical issues of the third gender | |
P10: Rakhi Ghosal:Experience of birthing: towards an ethics of relationality between the care giver and the birthing woman | |
3.00 to 3.30 pm | Tea |
3.30 to 5.00 pm | PARALLEL WORKSHOPS: W1 to W7 |
W1: Ethics committees and proposal review: Ethics over science?
Facilitators S Swarnalakshmi,Y R Gaitonde Center for AIDS Research and Education, Chennai Anant Bhan,Researcher, Bioethics and Global Health, Pune Prabha Desikan,Secretary, Institutional Review Board, Bhopal Memorial Hospital and Research Centre, Karond, Bhopal Medha Joshi,Head, Department of Library Science, Tata Memorial Hospital (Tata Memorial Center), Mumbai |
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W2: Mainstreaming ethics and gender in tuberculosis control programmes in urban settings: meeting the challenges of class disparity, gender discrimination and migration and displacement
Facilitators Bilkis Vissandjee,University of Montreal, Canada Lakshmi Lingam,Tata Institute of Social Sciences, Mumbai Himanshu Gupte,Project Co-ordinator, Inter Aide Development, India Hemlata Jiwnani,Programme Manager, Inter Aide Development, India |
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W3: Surreptitious medication for mentally ill: What are the rules of the game?
Facilitators Alok Sarin,Consultant Psychiatrist, Sitaram Bhartia Institute, New Delhi Prabha S Chandra,Professor,Dept of Psychiatry,National Institute of Mental Health and Neuro Sciences (NIMHANS), Bangalore |
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W4: Health care reforms and rationing in India: ethical issues and challenges
Facilitators Bijoya Roy,Junior Fellow Centre for Women’s Development Studies, New Delhi |
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W5: Role of health care providers in tobacco control
Facilitators Pankaj Chaturvedi,Associate Professor and Head & Neck Cancer Surgeon, Tata Memorial Hospital Mumbai Jagdish Kaur,Chief Medical Officer, Ministry of Health and Family Welfare, New Delhi Devika Chadha,Programme Director, Salaam Bombay Foundation, Mumbai |
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W6: The informed consent process in clinical trials
Facilitators Nusrat Shafiq, Samir Malhotra, Anjuman Arora,Dr Anita Malhotra,Post Graduate Institute of Medical Education and Research, Chandigarh |
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W7: Building accountability in the health system: experiences from Tamil Nadu
Facilitators Subhasri Balakrishnan, Rakhal Gaitonde, Ameer Khan, Vijayaprasad Gopichandran,Rural Women’s Social Education Centre, Tamil Nadu |
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Time | 2010 November 19 |
8.30 to 9.00 am | Registration |
9.00 to 10.30 am | PLENARY II: POLICY AND LAW FRAMEWORK |
Chairpersons
N K Sethi,Senior Advisor (Health), Planning Commission, Government of India Peush Sahni,Editor, National Medical Journal of India |
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Keynote address 1
Kajal Bhardwaj,Legal researcher, Lawyers Collective HIV/AIDS Unit Intellectual property rights and access to drugs |
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Keynote address 2
Richard Cash,Director of the Program on Ethical Issues in Global Health Research, Harvard School of Public Health “International guidelines for health research” |
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Keynote address 3
Binayak Sen,Medico Friend Circle, the People’s Union for Civil Liberties, and Christian Medical College, Vellore “Equity, justice and genocide” |
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10.30 to 11.00 am | Tea |
11.00 am to 12.30 pm | PARALLEL PAPER PRESENTATIONS: Groups P11 to P15 |
Group P11: Assisted reproductive technology | |
P11: Preeti Nayak:Assisted reproductive technologies and stem cell research: standing at the crossroads? | |
P11: Varada Madge:Women, infertility and ethical issues involved in assisted reproductive technologies | |
Group P12: Governance of maternal and child health programmes | |
P12: Supriya Kumar, Aravinda Pillalamarri:An ethical decision-making process under the Janani Suraksha Yojana: evidence from health care practitioners | |
P12: Joe Varghese:A study of the role of ethical and moral notions in the delivery of routine immunisation in Kerala and Tamil Nadu | |
P12: Indranil:Lack of government financing of safe motherhood: a clear case of denial of justice? | |
P12: Bijoya Roy:Service delivery contracts for women’s health:Ethical issues and challenges. | |
Group P13: Politics of global health | |
P13: Anuj Kapilashrami:The Global Fund and the new imperialism of aid: implications of governance for equity of health and HIV management | |
P13: Deapica Ravindran, Girish Ingle:Clinical trials in India: the needs of the country and the focus of the sponsors | |
P13: Anjali Shenoi:HPV vaccine trials in India: the collapse of governance, law and ethics | |
Group P14: Decision making at the end of life | |
P14: Caroline Rumble, Wendy Prentice, Rachel Burman, Jonathan Koffman, Cathy Shipman, Phil Hopkins, Will Bernal, Sara Leonard, Jo Noble, Odette Dampier, Myfanwy Morgan, Irene J Higginson:Conducting ethical end-of-life care research in the intensive care unit setting: challenges and solutions | |
P14: Aamir Jafarey, Farhat Moazam, Bushra Shirazi:Perspectives from Pakistan after the transplant law: what next? | |
Group P15: Experiments in public health | |
P15: Sunita V S Bandewar, Renaud Boulanger, T A John:Framework for assessment of ethical legitimacy of placebo use in social interventions | |
P15: Usha Raman, Sethu Sheeladevi:Considering ethics in community eye health planning: perspectives from an existing model | |
P15: Neha Madhiwalla:The ethics of social experiments in health in India: some questions and concerns | |
12.30 to 1.30 pm | Lunch |
1.30 to 3.00 pm | PARALLEL PAPER PRESENTATIONS: Groups P16 TO P19 |
Group P16: Regulating the use of human tissues | |
P16: Shashank Tiwari:Contested bioethical governance: a case study of stem cell science in India | |
P16: Sarah Hodges:The afterlives of afterbirth: placental waste economies in Chennai, c1980-2010 | |
Group P17: Responding to public health emergencies | |
P17: Chhanda Chakraborti:Ethical language usage and pandemic plans of South Asia | |
P17: Mahesh Devnani, Anil Kumar Gupta:Planning and response to the Influenza A (H1N1) pandemic: ethics, equity and justice | |
Group P18: International collaborations in health research and delivery | |
P18: R K Sharma, Prateek Bhatia:Ethical issues related to medical tourism | |
P18: Divya Bhagianadh:Contract research organisations in the clinical trials sector: boon or bane? | |
P18: Renuka Mukadam:The ART of regulation: a critical look at the Assisted Reproductive Technology (Regulation) Bill 2010 | |
Group P19: Ethics in designing of health research | |
P19: Anuska Kalita: Designing and evaluating action research: analysis through an ethical lens | |
P19: Raman Kutty:Cluster randomised trials: some dilemmas in methodology and ethics | |
Group P20: Parallel poster presentations | |
P20: P Malyadri:Governance and health care financing | |
P20: Jeeja MC, Jayakrishnan T:Health financing in India: policy and options | |
P20: Dhanesh Sharma:Dental education/ the dental profession is dealt with separately from medical education/ the medical profession | |
P20: Rubina Naqvi:How medical technology students feel about ethics in their curriculum | |
P20: Lord W Reza, Sadia Ahsan:Stand and work: a human rights issue with ethical concerns | |
P20: JK Lakshmi:Orientation to various systems of medicine in the baccalaureate medical curriculum | |
P20: Arun Kumar:Assessment of understanding of informed consent for a randomised controlled drug trial in patients with depression | |
P20: Prithpal S Matreja, Prem P Khosla, Amandeep Singh, Ashwani K Gupta:To assess the awareness of Informed consent document in medical students | |
P20: Lakshmi Prasad, Kabir Sheikh, Prasanna Saligram:Regulation as an instrument of governance: current architecture in Delhi and Madhya Pradesh | |
P20: Susheela Singh:Is the Janani Suraksha Yojana an answer to India’s longstanding battle with a high maternal mortality ratio? | |
P20: Anshul Avijit:Potential for therapeutic misconceptions due to norms of medical practice in clinic-based research | |
P20: Kavita Singh:Research governance and responsiveness to public health needs in developing countries | |
P20: Shailaja Tetali:Need for better governance in blood transfusion services in India | |
P20: Pratishtha Sengupta:Private health facilities: their role revisited in the Indian context | |
P20: Vishvas Garg:How effectively does an Indian government hospital deal with the ethical issue of informed consent among patients? A case study | |
P20: Vishvas Garg, Mehak Garg:Determining patient satisfaction levels with the counseling provided by pharmacists at the time of drug dispensing: a case study | |
P20: Sadhna Jain:Ethical integrity of research with special focus on HIV/AIDS | |
P20: Chesmal Siriwardhana:Understanding of research: a Sri Lankan perspective | |
P20: Sanjeev Rastogi:Extending awareness about prenatal nutrition in rural India: unearthing the ground realities | |
P20: Rahul Gupta:Race-specific breast cancer mortality disparity among elderly women in the state of Tennessee (USA) based on the degree of urbanization | |
P20: Antaryami Dash: The famine of good governance | |
P20: Satyajeet Nanda:Governance of health care: community expectations on service delivery for better utilization | |
P20: Arijita Dutta:Medical tourism in India | |
P20: Debasis Poddar, Alok Prabhu:Human experimentation sans prior informed consent: a love’s labour lost for medical jurisprudence in India | |
P20: Bhat Majeed:Medical tourism: globalisation of health care | |
P20: Sayeed Unisa:Issues regarding assisted reproductive technology | |
P20: Erum Kabani: Impact of family presence during resuscitation | |
3.00 to 3.30 pm | Tea |
3.30 to 5.00 pm | PARALLEL WORKSHOPS: W8 to W14 |
W8: Structuring and running an institutional ethics committee: learning from experience
Facilitators Members of the IEC, L V Prasad Eye Institute, Hyderabad |
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W9: Community-based monitoring; institutionalising public accountability
Facilitators Rakhal Gaitonde,Community Health Cell, Chennai, Tamil Nadu Nitin Jadhav,SATHI-CEHAT, Pune Abhijit Das,Centre for Health and Social Justice, Delhi Narendra Gupta,Prayas, Chittorgarh |
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W10: Ethics case study writing
Facilitators Richard Cash,Senior Lecturer on International Health, Department of Global Health and Population, Harvard School of Public Health, Boston, USA Sridevi Seetharaman,Swami Vivekananda Youth Movement, Mysore Girish Ingle,Centre for Studies in Ethics and Rights, Mumbai |
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W11: The use of advance directives in legislation for mental illness
Facilitators Alok Sarin,Consultant Psychiatrist, Sitaram Bhartia Institute, New Delhi Anirudh Kala,Clinical Director, North India Psychiatry Centre, 95-A, Model Gram, Ludhiana |
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W12: Informed consent process in clinical trials
Facilitators Nusrat Shafiq, Samir Malhotra, Anjuman Arora,Post Graduate Institute of Medical Education and Research, Chandigarh |
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W13: Updating guidance for ethics review of research involving human participants: a time to introduce standards?
Facilitators Abha Saxena,Executive Secretary, Research Ethics Review Committee, Research Policy and Cooperation, World Health Organization, Geneva |
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W14: Teaching bioethics through filmsFacilitators
Aamir Jafarey,Centre of Biomedical Ethics and Culture, Sind Institute of Urology and Transplantation, Karachi, Pakistan Bushra Shirazi,Ziauddin Medical College, Karachi, Pakistan Natasha Anwar,Shaukat Khanum Memorial Cancer Hospital & Research Centre, Karachi, Pakistan Syeda Rubina Naqvi,Sind Institute of Urology and Transplantation, Karachi, Pakistan |
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Time | 2010 November 20 |
8.30 to 9.00 am | Registration |
9.00 to 10.30 am | PARALLEL PAPER PRESENTATIONS: Group P21 to P25 |
Group P21:Ethical problems in everyday medical practice | |
P21: N Joglekar, R Paranjape, R Jain, G Rahane, R Potdar, S Sahay:Managing ethical issues around barriers to anti retroviral treatment adherence in Maharashtra, India | |
P21: Arathi M:Public health ethics: questions on breach of confidentiality of HIV/AIDS patients — a study of selected case law from India | |
P21: Bushra Shirazi, Aamir Jafarey:Perceptions of privacy and confidentiality: “Do I want them to know? | |
Group P22: Ethics of monitoring ethics:research ethics boards | |
P22: Suresh Kumar K:Ethical diversity and regulatory harmonisation for effective governance: an empirical exploration of the research ethics committees in India | |
P22: Nilay N Suthar:Ethics committee deregulation in India: an emerging epidemic | |
P22: Elif Atici, Teoman Atici: Evaluation of regulation on clinical research in Turkey: ethical and legal aspects | |
Group P23: Health information in the public domain | |
P23: Suchitra Wagle: The third party in decision making: the role of web-based medical facilitators in medical tourism | |
P23: Vasumathi Sriganesh: Ethics in literature searching | |
P23: Swetha Surve: Media coverage of the official response to a malaria outbreak in Mumbai | |
Group P24: Regulation and access to rational drugs | |
P24: Vishvas Garg, Mehak Garg: Are Indian drug stores operating ethically by practising the policy of free/paid home delivery of drugs to customers? | |
P24: Anant Bhan: Microbial resistance and implications for public health: exploring ethical dimensions | |
P24: Moinul Md Islam: Health services: the gaps need to be minimised | |
Group P25: Surveillance and epidemiological research | |
P25: Prakash C Gupta, Avinash U Sonawane: Ethical issues in epidemiological studies | |
P25: Nurani Subramanian Vishwanath:Length of the consent process: lessons from field research on the use of helmets by motorised two-wheeler drivers | |
P25: Michael Selgelid:Surveillance versus research ethics | |
10.30 to 11.00 am | Tea |
11.00 am to 12.30 pm | PLENARY III: IMPLEMENTATION AND MONITORING MECHANISMS |
Chairpersons
Amit Sengupta, Delhi Science Forum and Jan Swasthya Abhiyan Neha Madhiwalla,Coordinator, Centre for Studies in Ethics and Rights, Mumbai |
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Keynote address 1
Harsh Mander, Honorary Director of the Centre for Equity Studies, Visiting Professor IIM, Ahmedabad Information asymmetry/accountability mechanisms |
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Keynote address 2
Gagandeep Kang, Dean (Research), Professor, Christian Medical College, Vellore Institutional ethics mechanisms |
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Keynote address 3
Anuradha Gupta, Joint Secretary, National Rural Health Mission How to make regulations work |
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1.00 to 2.00 pm | VALEDICTORY SESSION |
Chairpersons
Mary E John: Senior Fellow and Director, Centre for Women in Developing Societies, New Delhi Sandhya Srinivasan:Executive Editor, IJME |
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Valedictory address
Upendra Baxi: Professor of Law in Development at the University of Warwick, United Kingdom. |