Vol , Issue Date of Publication: October 01, 2010

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NATIONAL BIOETHICS CONFERENCE

Conference Programme


Time 2010 November 17
8 am onwards Registration
8.30 to 1.00 pm SYMPOSIUM FOR ETHICS COMMITTEE MEMBERS.
Moderators
Nandini Kumar, Co- investigator, NIH project, National Institute of Epidemiology
Dr.Prathap Tharyan,Director of the South Asian Cochrane Network and Centre, CMC Vellore
George Thomas,Editor, IJME
8.30 to 1.00 pm PUBLICATION ETHICS WORKSHOP
Moderators
Peush Sahni, Editor, NMJI
Sandhya Srinivasan,Executive Editor, IJME
Nithya Gogtay,Associate Editor, Journal of Postgraduate Medicine
2.00 to 3.30 pm PANEL DISCUSSION- REGULATION OF MEDICAL EDUCATION AND PRACTICE
Facilitator
Rama Baru,Professor, Centre of Social Medicine and Community Health, JNU
Panelists
SK Sarin,Director, Institute of Liver and Biliary Sciences,New Delhi
N Ananthakrishnan,Former Head of Department of Surgery, JIPMER, Pondicherry
S Sreekumari,Professor of Biochemistry (retired), Medical College, Thiruvananthapuram
Anjali Gopalan,Founder and Executive Director of the Naz Foundation(India) Trust
Loon Gangte,Delhi Network of Positive People (DNP+)
4.00 to 6.00 pm INAUGURATION
Welcome address
Renu Saxena,Secretary, Institutional Ethics Committee, AIIMS
Chief Guest
Ramesh C Deka,Director, AIIMS, New Delhi
Chairpersons
Justice Leila Seth(Retd), Former Member, Law Commission of India
George Thomas,Editor, IJME
Inaugural address
Sujatha Rao,Secretary of Health and Family Welfare Ministry, Government of India
Keynote address
Sanjay Nagral,Department of Surgical Gastroenterology, Jaslok Hospital and Research Centre, Mumbai
Keynote address
David Legge,Associate Professor, School of Public Health, La Trobe University, Bundoora, Australia
Felicitation of Sunil Pandya, Chandra Gulhati and Vasantha Muthuswamy by Amar Jesani, Chinu Srinivasan and Mala Ramanathan
Time 2010 November 18
8.00 to 9.00 am Registration
9.00 to 10.30 am PLENARY I: STRUCTURAL ISSUES: EQUITY AND RIGHTS
Chairpersons
Samiran Nundy,Consultant Gastrointestinal Surgeon, Sir Ganga Ram Hospital, New Delhi
Sarojini NB,Sama, Resource Group for Women and Health, New Delhi
Keynote address 1
Kausar Khan,Department of Community Health Systems, Aga Khan University, Karachi, Pakistan
Global and local health inequities
Keynote address 2
Gita Sen,Professor, Indian Institute of Management, Bangalore
The Koppal experience
Keynote address 3
Yogesh Jain,Jan Swasthya Sahyog, Chhattisgarh
Medical care services: creating parallel systems for rich and poor
10.30 to 11.00 am Tea
11.00 am to 12.30 pm PARALLEL PAPER PRESENTATIONS: Groups P1 to P5
Group P1: Research among vulnerable groups
P1: Leni Chaudhuri, Reena Mary George:Ethics in prison health research: health and human rights issues affecting women in prisons in Maharashtra
P1: Sunita VS Bandewar:Community engagement in global health research: the case of the Majengo observational cohort study, Nairobi, Kenya.
P1: Chesmal Siriwardhana:Ethical dilemmas in mental health research among internally displaced people
Group P2: Building bioethics theory
P2: Sridevi Seetharam:Is the notion of human dignity a sufficient basis for global bioethics?
P2: Sanjeev Sood:Ethico-legal dilemmas in euthanasia
P2: Anil Kumar:Patient in question: is it only a one way relationship with regards to ethics, equity and justice?
Group P3: Ethical challenges in first contact care
P3: Biraj Swain, Manohar Agnani:Governance quo vadis: disguised private practice and the challenge of ensuring ethics
P3: Ashifa Sarkar Gayatri Chavan, Anjali Suryawanshi, Anjali Gokarn, Ashish Malekar, Benazir Patil, Shanti Pantavaidya, Neeta Karandikar:Addressing maternal and newborn health services by general practitioners for Mumbai’s urban poor: a case of unregulated quality
P3: Rewa Malhotra Kohli:Exploring gender issues and needs of family care providers of PLHA: a case study from Pune, India
Group P4: Health finance and access to health care
P4: Meghana Chandra:Social justice v. efficiency: the ethics of revenue generation through user fees in the public health sector
P4: Helen Sheehan:Medicare in the USA: a review of 45 years of health provision
P4: Md Ziauddin Khan, Rabi Narayan Parhi:Public health and policy infidelity: an enquiry into the nature of health provisioning in India
Group P5: Medical education
P5: Daphne Viveka Furtado:In search of a “medical ethics education” grounded in the Indian reality
P5: Jayakrishnan.T:Ethical issues in creating a cadre of rural doctors
12.30 to 1.30 pm Lunch
1.30 to 3.00 pm PARALLEL PAPER PRESENTATIONS: Groups P6 to P10
Group P6: Participation and informed consent in research
P6: Tamara Livshiz, David Osrin, Ujwala Bapat, Glyn Alcock, Sushmita Das, Neena Shah More,:Research ethics in developing countries: results from a participatory approach to ethical dilemmas, Mumbai, India
P6: Angus Dawson:Cluster randomised trials and the problem of informed consent
P6: Natasha Anwar, Mariam Hassan, Saima Faisal:Review of informed consent forms used in genetic research studies at a cancer hospital in Pakistan
Group P7: Disability and ethics
P7: Renu Addlakha:Ethics and pragmatics of research on disability
P7: Smitha S Parakkal:The implications of the UNCRPD on the governance of health care of persons with disabilities
P7: Harish T, Santosh Kumar Chaturvedi:Amendments to the Mental Health Act, 1987 and ethical issues
Group P8: A gender critique of the health system
P8: S V Kameswari, Prakash Vinjamuri, Kavitha Kuruganti, Prajit K Basu:Medical ethics: a case study of hysterectomy in Andhra Pradesh
P8: Supriya Bandekar:When the political is personal: State discourse through the National Population Policy and the Mahrashtra state population policy
P8: Sana Contracter, Sangeeta Rege:Need for better governance in responding to cases of sexual assault in the health sector
Group P9: Organising health services for equity and justice
P9: Rupali Gupta, Sangeeta Rege:Challenges/dilemmas in institutionalising a crisis centre for women facing domestic violence in the public health system
P9: Oommen C Kurian, Prashant Raymus, Jui Ranade- Sathe:Equity through exemptions? User fees in a municipal hospital in Maharashtra
P9: JK Lakshmi:Integration of AYUSH into PHCs in Andhra Pradesh: lacunae to be explored
Group P10: Humanising the patient-provider relationship
P10: Shobha Mocherla, Usha Raman, Brien Holden:Expressions of equity: imbalances in the patient-clinician interaction
P10: Radhika Taroor:Ethical issues of the third gender
P10: Rakhi Ghosal:Experience of birthing: towards an ethics of relationality between the care giver and the birthing woman
3.00 to 3.30 pm Tea
3.30 to 5.00 pm PARALLEL WORKSHOPS: W1 to W7
W1: Ethics committees and proposal review: Ethics over science?
Facilitators
S Swarnalakshmi,Y R Gaitonde Center for AIDS Research and Education, Chennai
Anant Bhan,Researcher, Bioethics and Global Health, Pune
Prabha Desikan,Secretary, Institutional Review Board, Bhopal Memorial Hospital and Research Centre, Karond, Bhopal
Medha Joshi,Head, Department of Library Science, Tata Memorial Hospital (Tata Memorial Center), Mumbai
W2: Mainstreaming ethics and gender in tuberculosis control programmes in urban settings: meeting the challenges of class disparity, gender discrimination and migration and displacement
Facilitators
Bilkis Vissandjee,University of Montreal, Canada
Lakshmi Lingam,Tata Institute of Social Sciences, Mumbai
Himanshu Gupte,Project Co-ordinator, Inter Aide Development, India
Hemlata Jiwnani,Programme Manager, Inter Aide Development, India
W3: Surreptitious medication for mentally ill: What are the rules of the game?
Facilitators
Alok Sarin,Consultant Psychiatrist, Sitaram Bhartia Institute, New Delhi
Prabha S Chandra,Professor,Dept of Psychiatry,National Institute of Mental Health and Neuro Sciences (NIMHANS), Bangalore
W4: Health care reforms and rationing in India: ethical issues and challenges
Facilitators
Bijoya Roy,Junior Fellow Centre for Women’s Development Studies, New Delhi
W5: Role of health care providers in tobacco control
Facilitators
Pankaj Chaturvedi,Associate Professor and Head & Neck Cancer Surgeon, Tata Memorial Hospital Mumbai
Jagdish Kaur,Chief Medical Officer, Ministry of Health and Family Welfare, New Delhi
Devika Chadha,Programme Director, Salaam Bombay Foundation, Mumbai
W6: The informed consent process in clinical trials
Facilitators
Nusrat Shafiq, Samir Malhotra, Anjuman Arora,Dr Anita Malhotra,Post Graduate Institute of Medical Education and Research, Chandigarh
W7: Building accountability in the health system: experiences from Tamil Nadu
Facilitators
Subhasri Balakrishnan, Rakhal Gaitonde, Ameer Khan, Vijayaprasad Gopichandran,Rural Women’s Social Education Centre, Tamil Nadu
Time 2010 November 19
8.30 to 9.00 am Registration
9.00 to 10.30 am PLENARY II: POLICY AND LAW FRAMEWORK
Chairpersons
N K Sethi,Senior Advisor (Health), Planning Commission, Government of India
Peush Sahni,Editor, National Medical Journal of India
Keynote address 1
Kajal Bhardwaj,Legal researcher, Lawyers Collective HIV/AIDS Unit
Intellectual property rights and access to drugs
Keynote address 2
Richard Cash,Director of the Program on Ethical Issues in Global Health Research, Harvard School of Public Health
“International guidelines for health research”
Keynote address 3
Binayak Sen,Medico Friend Circle, the People’s Union for Civil Liberties, and Christian Medical College, Vellore
“Equity, justice and genocide”
10.30 to 11.00 am Tea
11.00 am to 12.30 pm PARALLEL PAPER PRESENTATIONS: Groups P11 to P15
Group P11: Assisted reproductive technology
P11: Preeti Nayak:Assisted reproductive technologies and stem cell research: standing at the crossroads?
P11: Varada Madge:Women, infertility and ethical issues involved in assisted reproductive technologies
Group P12: Governance of maternal and child health programmes
P12: Supriya Kumar, Aravinda Pillalamarri:An ethical decision-making process under the Janani Suraksha Yojana: evidence from health care practitioners
P12: Joe Varghese:A study of the role of ethical and moral notions in the delivery of routine immunisation in Kerala and Tamil Nadu
P12: Indranil:Lack of government financing of safe motherhood: a clear case of denial of justice?
P12: Bijoya Roy:Service delivery contracts for women’s health:Ethical issues and challenges.
Group P13: Politics of global health
P13: Anuj Kapilashrami:The Global Fund and the new imperialism of aid: implications of governance for equity of health and HIV management
P13: Deapica Ravindran, Girish Ingle:Clinical trials in India: the needs of the country and the focus of the sponsors
P13: Anjali Shenoi:HPV vaccine trials in India: the collapse of governance, law and ethics
Group P14: Decision making at the end of life
P14: Caroline Rumble, Wendy Prentice, Rachel Burman, Jonathan Koffman, Cathy Shipman, Phil Hopkins, Will Bernal, Sara Leonard, Jo Noble, Odette Dampier, Myfanwy Morgan, Irene J Higginson:Conducting ethical end-of-life care research in the intensive care unit setting: challenges and solutions
P14: Aamir Jafarey, Farhat Moazam, Bushra Shirazi:Perspectives from Pakistan after the transplant law: what next?
Group P15: Experiments in public health
P15: Sunita V S Bandewar, Renaud Boulanger, T A John:Framework for assessment of ethical legitimacy of placebo use in social interventions
P15: Usha Raman, Sethu Sheeladevi:Considering ethics in community eye health planning: perspectives from an existing model
P15: Neha Madhiwalla:The ethics of social experiments in health in India: some questions and concerns
12.30 to 1.30 pm Lunch
1.30 to 3.00 pm PARALLEL PAPER PRESENTATIONS: Groups P16 TO P19
Group P16: Regulating the use of human tissues
P16: Shashank Tiwari:Contested bioethical governance: a case study of stem cell science in India
P16: Sarah Hodges:The afterlives of afterbirth: placental waste economies in Chennai, c1980-2010
Group P17: Responding to public health emergencies
P17: Chhanda Chakraborti:Ethical language usage and pandemic plans of South Asia
P17: Mahesh Devnani, Anil Kumar Gupta:Planning and response to the Influenza A (H1N1) pandemic: ethics, equity and justice
Group P18: International collaborations in health research and delivery
P18: R K Sharma, Prateek Bhatia:Ethical issues related to medical tourism
P18: Divya Bhagianadh:Contract research organisations in the clinical trials sector: boon or bane?
P18: Renuka Mukadam:The ART of regulation: a critical look at the Assisted Reproductive Technology (Regulation) Bill 2010
Group P19: Ethics in designing of health research
P19: Anuska Kalita: Designing and evaluating action research: analysis through an ethical lens
P19: Raman Kutty:Cluster randomised trials: some dilemmas in methodology and ethics
Group P20: Parallel poster presentations
P20: P Malyadri:Governance and health care financing
P20: Jeeja MC, Jayakrishnan T:Health financing in India: policy and options
P20: Dhanesh Sharma:Dental education/ the dental profession is dealt with separately from medical education/ the medical profession
P20: Rubina Naqvi:How medical technology students feel about ethics in their curriculum
P20: Lord W Reza, Sadia Ahsan:Stand and work: a human rights issue with ethical concerns
P20: JK Lakshmi:Orientation to various systems of medicine in the baccalaureate medical curriculum
P20: Arun Kumar:Assessment of understanding of informed consent for a randomised controlled drug trial in patients with depression
P20: Prithpal S Matreja, Prem P Khosla, Amandeep Singh, Ashwani K Gupta:To assess the awareness of Informed consent document in medical students
P20: Lakshmi Prasad, Kabir Sheikh, Prasanna Saligram:Regulation as an instrument of governance: current architecture in Delhi and Madhya Pradesh
P20: Susheela Singh:Is the Janani Suraksha Yojana an answer to India’s longstanding battle with a high maternal mortality ratio?
P20: Anshul Avijit:Potential for therapeutic misconceptions due to norms of medical practice in clinic-based research
P20: Kavita Singh:Research governance and responsiveness to public health needs in developing countries
P20: Shailaja Tetali:Need for better governance in blood transfusion services in India
P20: Pratishtha Sengupta:Private health facilities: their role revisited in the Indian context
P20: Vishvas Garg:How effectively does an Indian government hospital deal with the ethical issue of informed consent among patients? A case study
P20: Vishvas Garg, Mehak Garg:Determining patient satisfaction levels with the counseling provided by pharmacists at the time of drug dispensing: a case study
P20: Sadhna Jain:Ethical integrity of research with special focus on HIV/AIDS
P20: Chesmal Siriwardhana:Understanding of research: a Sri Lankan perspective
P20: Sanjeev Rastogi:Extending awareness about prenatal nutrition in rural India: unearthing the ground realities
P20: Rahul Gupta:Race-specific breast cancer mortality disparity among elderly women in the state of Tennessee (USA) based on the degree of urbanization
P20: Antaryami Dash: The famine of good governance
P20: Satyajeet Nanda:Governance of health care: community expectations on service delivery for better utilization
P20: Arijita Dutta:Medical tourism in India
P20: Debasis Poddar, Alok Prabhu:Human experimentation sans prior informed consent: a love’s labour lost for medical jurisprudence in India
P20: Bhat Majeed:Medical tourism: globalisation of health care
P20: Sayeed Unisa:Issues regarding assisted reproductive technology
P20: Erum Kabani: Impact of family presence during resuscitation
3.00 to 3.30 pm Tea
3.30 to 5.00 pm PARALLEL WORKSHOPS: W8 to W14
W8: Structuring and running an institutional ethics committee: learning from experience
Facilitators
Members of the IEC, L V Prasad Eye Institute, Hyderabad
W9: Community-based monitoring; institutionalising public accountability
Facilitators
Rakhal Gaitonde,Community Health Cell, Chennai, Tamil Nadu
Nitin Jadhav,SATHI-CEHAT, Pune
Abhijit Das,Centre for Health and Social Justice, Delhi
Narendra Gupta,Prayas, Chittorgarh
W10: Ethics case study writing
Facilitators
Richard Cash,Senior Lecturer on International Health, Department of Global Health and Population, Harvard School of Public Health, Boston, USA
Sridevi Seetharaman,Swami Vivekananda Youth Movement, Mysore
Girish Ingle,Centre for Studies in Ethics and Rights, Mumbai
W11: The use of advance directives in legislation for mental illness
Facilitators
Alok Sarin,Consultant Psychiatrist, Sitaram Bhartia Institute, New Delhi
Anirudh Kala,Clinical Director, North India Psychiatry Centre, 95-A, Model Gram, Ludhiana
W12: Informed consent process in clinical trials
Facilitators
Nusrat Shafiq, Samir Malhotra, Anjuman Arora,Post Graduate Institute of Medical Education and Research, Chandigarh
W13: Updating guidance for ethics review of research involving human participants: a time to introduce standards?
Facilitators
Abha Saxena,Executive Secretary, Research Ethics Review Committee, Research Policy and Cooperation, World Health Organization, Geneva
W14: Teaching bioethics through filmsFacilitators
Aamir Jafarey,Centre of Biomedical Ethics and Culture, Sind Institute of Urology and Transplantation, Karachi, Pakistan
Bushra Shirazi,Ziauddin Medical College, Karachi, Pakistan
Natasha Anwar,Shaukat Khanum Memorial Cancer Hospital & Research Centre, Karachi, Pakistan
Syeda Rubina Naqvi,Sind Institute of Urology and Transplantation, Karachi, Pakistan
Time 2010 November 20
8.30 to 9.00 am Registration
9.00 to 10.30 am PARALLEL PAPER PRESENTATIONS: Group P21 to P25
Group P21:Ethical problems in everyday medical practice
P21: N Joglekar, R Paranjape, R Jain, G Rahane, R Potdar, S Sahay:Managing ethical issues around barriers to anti retroviral treatment adherence in Maharashtra, India
P21: Arathi M:Public health ethics: questions on breach of confidentiality of HIV/AIDS patients — a study of selected case law from India
P21: Bushra Shirazi, Aamir Jafarey:Perceptions of privacy and confidentiality: “Do I want them to know?
Group P22: Ethics of monitoring ethics:research ethics boards
P22: Suresh Kumar K:Ethical diversity and regulatory harmonisation for effective governance: an empirical exploration of the research ethics committees in India
P22: Nilay N Suthar:Ethics committee deregulation in India: an emerging epidemic
P22: Elif Atici, Teoman Atici: Evaluation of regulation on clinical research in Turkey: ethical and legal aspects
Group P23: Health information in the public domain
P23: Suchitra Wagle: The third party in decision making: the role of web-based medical facilitators in medical tourism
P23: Vasumathi Sriganesh: Ethics in literature searching
P23: Swetha Surve: Media coverage of the official response to a malaria outbreak in Mumbai
Group P24: Regulation and access to rational drugs
P24: Vishvas Garg, Mehak Garg: Are Indian drug stores operating ethically by practising the policy of free/paid home delivery of drugs to customers?
P24: Anant Bhan: Microbial resistance and implications for public health: exploring ethical dimensions
P24: Moinul Md Islam: Health services: the gaps need to be minimised
Group P25: Surveillance and epidemiological research
P25: Prakash C Gupta, Avinash U Sonawane: Ethical issues in epidemiological studies
P25: Nurani Subramanian Vishwanath:Length of the consent process: lessons from field research on the use of helmets by motorised two-wheeler drivers
P25: Michael Selgelid:Surveillance versus research ethics
10.30 to 11.00 am Tea
11.00 am to 12.30 pm PLENARY III: IMPLEMENTATION AND MONITORING MECHANISMS
Chairpersons
Amit Sengupta, Delhi Science Forum and Jan Swasthya Abhiyan
Neha Madhiwalla,Coordinator, Centre for Studies in Ethics and Rights, Mumbai
Keynote address 1
Harsh Mander, Honorary Director of the Centre for Equity Studies, Visiting Professor IIM, Ahmedabad
Information asymmetry/accountability mechanisms
Keynote address 2
Gagandeep Kang, Dean (Research), Professor, Christian Medical College, Vellore
Institutional ethics mechanisms
Keynote address 3
Anuradha Gupta, Joint Secretary, National Rural Health Mission
How to make regulations work
1.00 to 2.00 pm VALEDICTORY SESSION
Chairpersons
Mary E John: Senior Fellow and Director, Centre for Women in Developing Societies, New Delhi
Sandhya Srinivasan:Executive Editor, IJME
Valedictory address
Upendra Baxi: Professor of Law in Development at the University of Warwick, United Kingdom.
About the Authors
Editorial Team ()
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