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Between participation and signature: a response to “Autonomy and risk in HPSR studies”

Rakhi Ghoshal

DOI: 10.20529/IJME.2020.011


Abstract

Health Policy and Systems Research (HPSR) is defined as the “production of new knowledge to improve how societies organise themselves to achieve health goals” (1: p 4); the focus of HPSR studies is on generating, using and disseminating research to strengthen health systems, particularly in low-and middle-income countries. There has been an increasing focus on defining HPSR clearly and on its ethical components and challenges, especially as this domain, is fundamentally different from biomedical /clinical research. One of the imperatives of HPSR is the “co-production of knowledge” (1: p 4) by the researcher, the communities involved, and healthcare providers; and this calls for shared responsibility and ownership, which is not an essential aspect of biomedical research

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