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1. | Title | Title of document | Public engagement in the context of a CHIM study |
2. | Creator | Author's name, affiliation, country | Manjulika Vaz; St. John’s Research Institute, St. John’s National Academy of Health Sciences, Bangalore 560 034, India |
3. | Subject | Discipline(s) | |
3. | Subject | Keyword(s) | |
4. | Description | Abstract | Public engagement especially in new and contested areas of medical research is an essential ethical requirement. It helps to build trust, to embed ethical discourse in public beliefs and values and widen the accountability and the governance of biomedical research. Historically, ethical codes resulted from public protest following unethical medical research practices. Unethical practices do continue to a certain extent, primarily among unempowered communities. The need for public awareness, public deliberation and public advocacy are even more important in a country like India, where "research" is not understood, where paternalism on the part of the health professional, and the non-questioning attitude of the patient/participant have been customary, followed in recent times, by mistrust and an expectation of corruption in the public mind when dealing with a healthcare set up. CHIM studies carry various levels of unknowns. There are challenges of public non-comprehension of the need for being 'infected'; of families and communities being at risk; of possible high levels of compensation being offered as inducements; of other public health / preventive measures being supplanted. It is important for researchers and regulators in India not to rush into implementing such studies but to first engage with the public, listen to their concerns; and initiate deliberative mechanisms for public — researcher dialogue; and invest in public advocacy. |
5. | Publisher | Organizing agency, location | Forum for Medical Ethics Society |
6. | Contributor | Sponsor(s) | |
7. | Date | (YYYY-MM-DD) | 2018-11-16 |
8. | Type | Status & genre | |
8. | Type | Type | |
9. | Format | File format | HTML , PDF |
10. | Identifier | Uniform Resource Identifier | https://ijme.in/articles/public-engagement-in-the-context-of-a-chim-study/ |
11. | Source | Title; vol., no. (year) | Indian Journal of Medical Ethics;: Anticipating new frontiers |
12. | Language | English=en | en |
13. | Relation | Supp. Files | |
14. | Coverage | Geo-spatial location, chronological period, research sample (gender, age, etc.) | |
15. | Rights | Copyright and permissions | All articles published in IJME are available on its website free of charge. The copyright for published material belongs to IJME/FMES. IJME freely permits the reprint (or reproduction on a website) of articles from the journal, as long as this is for non-commercial use and appropriate credit is given to the author and the journal and publication details are mentioned. The commercial use of our content can be made only after obtaining permission from and on payment to IJME. This is intended to support production of the journal. |