Dublin Core PKP Metadata Items Metadata for this Document
 
1. Title Title of document Counselling for thalassaemia
 
2. Creator Author's name, affiliation, country Editorial Team
 
3. Subject Discipline(s)
 
3. Subject Keyword(s)
 
4. Description Abstract This audit of the counselling process for couples in the UK whose pregnancies were affected by a major thalassaemia sought to measure how and when genetic risk was identified for each couple, and whether and when prenatal diagnosis was offered. The findings: standard practice of prenatal screening and counselling for haemoglobin disorders was not followed in a large proportion of the couples interviewed, resulting in a number of couples giving birth to a child with thalassaemia major. If they had been offered prenatal diagnosis, some of these couples would have terminated their pregnancies. Although antenatal screening and counselling for haemoglobin disorders are standard practices in the United Kingdom, they are delivered inadequately and inequitably. An explicit national policy is needed, to make early prenatal diagnosis available to all couples.
 
5. Publisher Organizing agency, location Forum for Medical Ethics Society
 
6. Contributor Sponsor(s)
 
7. Date (YYYY-MM-DD) 2016-11-30
 
8. Type Status & genre
 
8. Type Type
 
9. Format File format HTML , PDF
 
10. Identifier Uniform Resource Identifier https://ijme.in/articles/counselling-for-thalassaemia/
 
11. Source Title; vol., no. (year) Indian Journal of Medical Ethics;: July – September 2000
 
12. Language English=en en
 
13. Relation Supp. Files
 
14. Coverage Geo-spatial location, chronological period, research sample (gender, age, etc.)
 
15. Rights Copyright and permissions

All articles published in IJME are available on its website free of charge. The copyright for published material belongs to IJME/FMES. IJME freely permits the reprint (or reproduction on a website) of articles from the journal, as long as this is for non-commercial use and appropriate credit is given to the author and the journal and publication details are mentioned. The commercial use of our content can be made only after obtaining permission from and on payment to IJME. This is intended to support production of the journal.